Suchergebnisse

Cover -- Half Title -- Title Page -- Copyright Page -- Contents -- Foreword -- Preface -- About the editors -- List of contributors -- Acknowledgements -- Introducing our discourse -- Section 1: A global overview Section introduction -- 1 Paediatric palliative care as a basic human right -- 2 The International Children's Palliative Care Network (ICPCN): a global overview -- 3 Organisation of care in the UK -- 4 Organisation of care in Romania -- 5 Organisation of care in Uganda -- 6 Organisation of care in South Africa -- Section 2: Focusing on families: hearing the evidence Section introduction -- 7 A research perspective: narrative research -- 8 Part 1: 'Where's my sitcom?' The young adult's voice -- Part 2: Commentary on the young adult's story -- 9 Part 1: The parent's voice -- Part 2: Jamie's continuing care domains -- Part 3: Commentary on the parent's story: the key to integrating services -- 10 Part 1: A child's life path -- Part 2: A philosophical perspective on a father's tale -- 11 Hearing the voices of parents and carers -- 12 Hearing the voices of siblings -- 13 Transitions within the family -- Section 3: Minimising crisis points in paediatric palliative care Section introduction -- 14 Pathways in palliative care -- 15 Use of clinical practice guidelines and critical pathways -- 16 Minimising crisis points in paediatric palliative care: the ACT care pathways in action -- Section 4: Supporting transitions Section introduction -- 17 Transitions within acute care settings: the chaplain's perspective -- 18 Transitions at the beginning of life: psychological support -- 19 Managing transitions to hospice care: the hospice consultant's perspective -- 20 Supporting transitions: effective palliative care teams -- Section 5: Evidence/knowledge transfer into practice Section introduction